Donated money is spent on new equipment, facilities to make treatment more comfortable for both patients and carers and research into methods of managing and monitoring leukaemia and related blood diseases carried out at the hospital.

 

West Country family of six to swim the Channel for charity.

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FitzHenry familyTwo generations of the FitzHenry family are joining forces to swim the Channel at the end of July in aid of charities which are particularly dear to them. This is a first for all of them and a real challenge as some of them normally only swim when on holiday.

Paul and his brothers David and Neal are joined by Paul's sons Lee, Daniel and Craig in this effort which they hope will raise a great deal of money for their chosen Charities.

David told his brothers that they had either caught the sun or had too much Devon cider when they told him of the idea of swimming the channel for charity. David takes to the water when on holiday and then only if it's warm. He with his wife Lesley came into contact with 'ELF' Exeter Leukaemia fund when Leslie's mother was diagnosed with Aplastic Anaemia and was treated at the Haematology unit at the Royal Devon and Exeter Hospital. " When Ann was taken ill we were all devastated; now as she is slowly recovering we wanted to do something to say thank you for the wonderful treatment she has received and we immediately thought of ELF".

Neal along with the whole FitzHenry family were shaken when they heard the news that his favourite Aunt Shelagh went to see her doctor when she returned home to Adelaide from her last trip to England, as she wasn't feeling herself. I'll let Neal tell you what happened and what prompted him in his choice of charity when they decided to do the Channel swim "ALS is something none of us had heard of : I now know it is a form of Motor Neurone Disease which is a hideous disease which is progressively disabling. Aunt Shelagh has even been to China for Stem Cell treatment to try to slow the effects of the disease. Supporting the MND Association is one way as a family we can do something to help find new treatments and maybe one day a cure."

Paul told me that his choice of charity "is the one Charity that my mother-in-law supported more than any other, before she sadly passed away. 'Rays of Sunshine' is the organisation that tries to grant terminally ill children their life long wish."

Paul's choice is also the main choice of his children who are Swimming the Channel for Charity along with him and their uncles. Lee speaking for Daniel and Craig as well said that "all three of the charities have effected not only their family but also friends of theirs either directly or indirectly. We are also looking forward to showing the 'oldies' how it should be done, and expect to swim twice as many miles during our time in the water, as Dad and our uncles".

Swimmers shaking handsSpeaking as a family they said that— "we all face challenges in our lives but for most people the challenges pale in to insignificance when compared to those faced by sufferers of Motor Neurone Disease, Leukaemia or terminally ill children and their parents". The swimmers will all face their own challenges during the swim, the cold, the knowledge that they are many miles from land, boredom and disorientation, exhaustion especially for the holiday swimmers. For one it will be the fear of sharks which are sometimes seen during a swim, for another jellyfish.

They are united in saying that all of it is worth it if they can raise thousands of pounds for the Charities through sponsorship.

Who benefits?

ELF logoExeter Leukaemia Fund

David's mother-in-law Ann was diagnosed with Aplastic anaemia last year, since then the support and care she has received during her treatment has been tremendous and this coupled with their groundbreaking research into furthering the improvement in diagnosing and treating Leukaemia makes it easy for me, in a very small way, to support their vital work In 1996 ELF embarked upon an ambitious project to set up state-of-the-art molecular genetic tests at the newly opened Molecular Genetics Laboratory at the Royal Devon & Exeter Hospital.

Leukaemia was a bolt out of the blue for me and the treatment not only affected me but everyone close to me. And it is only since going through this myself I realise what people before me have been through and what, unfortunately, people in the future will go through.

Motor Neurone LogoMotor Neurone Disease Association

Last year we received the sad and sobering news that one of our favourite aunts has been diagnosed with Motor Neurone Disease (the same disease that Professor Stephen Hawkins has). It's a terrible degenerative disease that sees the body weaken and waste away leaving the sufferer trapped in their otherwise unaffected minds. Shelagh is someone full of the spirit of life and a joy to be around and for us the tragedy is compounded because she lives in Australia and there is a real danger she may not be well enough to ever make the journey to England again. The Motor Neurone Disease Association does fantastic work in supporting those with MND and the families and carers around them. It also funds and promotes research into understanding, diagnosing and treating this devastating disease.

Rays of SunshineRays of Sunshine Children's Charity

We have chosen this charity not only for the obvious reasons but also as it is one the that Paul's mother in law supported before she sadly passed away Rays of Sunshine Children's Charity was formed in 2004 to help seriously and terminally ill children between the ages of 3-18, across the United Kingdom. It does this by:

1. Granting these children's wishes however impossible the wish may seem

2. Purchasing equipment such as electric wheelchairs or hoists to make their lives easier

3. Helping hospitals, hospices and specialist schools improve their facilities With your help and support together we can turn wishes into happy memories.

 

Showing your support

ELF with the agreement of the other charities has agreed to be the online collection centre. The donations will be split equally between the charities after the swim. The only costs to be paid out of the donations is for the essential safety equipment required to be allowed to make the swim i.e the boat, pilot, registration etc.

For further information and to support the family's efforts, please contact ELF on 01392 493344 - or click here to pledge a donation.

Another way is to sign the official sponsorship forms and donate cash or cheques. Contact us on 01392 493344 for full details.

 

Exeter Leukemia Fund's 20th Anniversary

On 22 October 1987 the Deed of Trust establishing Exeter Leukaemia Fund as a Charity was signed and registered. More than £4 million has been contributed to Haematology treatment at the RD&E since and the Haematology Centre, for which ELF two thirds of the funding (£1.5 million), is recognised as one of the best in Europe.
 
A number of special events have taken place and are being organised to celebrate 20 Years of ELF. Events will incorporate the 20 Years of ELF brand and special logo and culminate with ELF’s 21st Birthday Party in October. It is hoped that this year of celebration will raise a substantial sum which will be used to enhance patient care; refurbish the gardens at the Centre and fund new research building on the diagnostic tests already delivered which can only enhance the treatment of leukaemia and related disorders.